The Faces of the 11%

Meet the Warriors

Behind every data point, genetic test, and research grant is a child. These are the warriors of the SCN1A Gain of Function community. They are the reason we fight.

Roman

Roman

4 Years Old

Otto

Otto

1 Year Old

Savannah

Savannah

1 Year Old

Leo

Leo

8 Months Old

Ella

Ella

11 Years Old

Dominic

Dominic

6 Years Old

Elliot

Elliot

2 Years Old

Is your child part of the 11%?

To fund targeted research, we must organize our community. Join our private patient network to help us map the Gain of Function phenotype and share critical clinical insights.

Add Your Warrior