Get Involved
Join the Movement
Whether you’re a parent, friend, clinician, or simply passionate about rare disease advocacy, there’s a place for you in our mission.
By volunteering your time, talents, or platform, you become part of a growing movement to bring hope and help where it’s needed most.
Upcoming events
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Dream it.
10.21 7:00-8:00PM
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more.
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Build it.
10.21 7:00-8:00PM
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more.
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Grow it.
10.21 7:00-8:00PM
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more.
Get Connected
Whether you’re a caregiver, advocate, medical professional, researcher, or potential partner, we’re always open to connecting with those who share our mission. If you’re interested in volunteering, collaborating, fundraising, or simply learning more about SCN1A gain-of-function epilepsy, please use the form below. A member of our team will respond as soon as possible.