A Direct Line to the Foundation
Whether you are a family seeking guidance after a terrifying new diagnosis, a researcher looking to collaborate on EIDEE data, or an advocate wanting to help fund the cure, our founding leadership team is ready to connect.
Please use the secure form to route your message to the correct department. A member of our team will review your inquiry and respond within 24-48 hours.
"We are building the raft while swimming. Every connection, every data point, and every dollar helps us secure a better future for children with SCN1A Gain-of-Function."