Make an
impact today
Your donation helps fund research, raise awareness, and provide critical support to families affected by SCN1A Gain-of-Function genetic mutation.
Year 1 Seed Funding
Fund the cure for the 11%.
As a founding, family-led organization, we are building the raft while swimming. We rely entirely on seed funding to launch our Year 1 Roadmap and advocate for children who require a fundamentally different medical approach than traditional SCN1A patients.
- Institutional Grants: Funding independent research specifically targeting Gain of Function mechanisms and the "Philadelphia Variant."
- Patient Registry: Building the infrastructure to map treatments and symptom timelines for clinical trial readiness.
- Clinical Awareness: Distributing decision-support materials to ER doctors and neurologists to prevent iatrogenic harm.
The SCN1A Gain of Function Foundation is a pending 501(c)(3) nonprofit organization. Your contribution today serves as the critical seed capital required to launch our formal research partnerships.