Make an
impact today

Your donation helps fund research, raise awareness, and provide critical support to families affected by SCN1A Gain-of-Function genetic mutation.

Fund the cure for the 11%.

As a founding, family-led organization, we are building the raft while swimming. We rely entirely on seed funding to launch our Year 1 Roadmap and advocate for children who require a fundamentally different medical approach than traditional SCN1A patients.

  • Institutional Grants: Funding independent research specifically targeting Gain of Function mechanisms and the "Philadelphia Variant."
  • Patient Registry: Building the infrastructure to map treatments and symptom timelines for clinical trial readiness.
  • Clinical Awareness: Distributing decision-support materials to ER doctors and neurologists to prevent iatrogenic harm.
The SCN1A Gain of Function Foundation is a registered 501(c)(3) nonprofit organization (EIN: 41-4392005). Your contribution is tax-deductible to the fullest extent of the law and provides the critical seed capital required to launch our formal research partnerships.
3% Cover the Fee